The 2020 census is coming up and it is critical for people with intellectual and developmental disabilities (I/DD) and their families. The census seeks to include every individual living in the United States, but many people with disabilities are historically left out of the count—harmfully impacting funding, services, and supports.


Census data helps guide the distribution of more than $800 billion in federal funding. The count, conducted every 10 years, is also directly tied to key funding streams that support people with disabilities to live in the community, instead of institutions. It determines political representation and affects public policy, as well as programs and supports in housing, voting, education, health care, and public health. The Arc is a National Partner of the Census Bureau, and will be working hard to raise awareness, share resources, and work to ensure that all people with disabilities are counted in the upcoming census.


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